WHAT IS RETT SYNDROME?
Imagine the symptoms of Autism, Cerebral Palsy, Parkinson’s, Epilepsy, and Anxiety disorder all in one little girl.
Rett Syndrome is a genetic neurological disorder that almost exclusively affects girls. It strikes randomly, typically at the age of 12 to 18 months, and is caused by random mutations of the MECP2 gene on one of the X chromosomes.
Rett Syndrome deprives young children of speech, hand use, normal movement often including the ability to walk. As the children enter childhood the disorder brings anxiety, seizures, tremors, breathing difficulties, severe gastrointestinal issues. While their bodies suffer, it is believed that their cognitive abilities remain largely intact. Although most children survive to adulthood, they require total round-the-clock care.
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Why Cureforrett.org?
Rett Syndrome doesn’t have to be a life sentence! Rett Eliminated Together Today is a 501(c)3 Arizona nonprofit organization that funds research to find a cure for Rett Syndrome.
Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal subjects. Through extensive research a new gene therapy treatment has been identified with the potential to reverse the debilitating symptoms of Rett Syndrome and give back the lives of the 350,000 children affected by the disorder.
Rett Eliminated is dedicated to funding the research to find this curve. Your contributions directly fund this ground-breaking research.
1 in 10,000
girls are
affected with the disorder
Every 90
minutes a girl is
born with Rett Syndrome
350,000
girls and women
live with Rett Syndrome
ROADMAP FOR A CURE
The Rett Syndrome Research Trust’s 3-Year Strategic Plan to a Find Cure
#ReverseRett
Your gift today can help change a child’s future.
Cureforrett.org is a 501(c)3 non-profit corporation registered as the Rett Eliminated Together Today Foundation