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WHAT IS RETT SYNDROME?

Imagine this: A young girl afflicted with several major disorders – Autism, Cerebral Palsy, Parkinsons, Epilepsy, and Anxiety.

Rett Syndrome is a genetic neurological disorder that almost exclusively affects girls. It strikes randomly, typically at the age of 6 to 18 months, and is caused by random mutations of the MECP2 gene on one of the X chromosomes.

Rett Syndrome deprives young children of speech, hand use, normal movement often including the ability to walk. The disorder brings anxiety, seizures, tremors, breathing difficulties, severe gastrointestinal issues and often Scoliosis – a curvature of the spine. While their bodies suffer, it is believed that their cognitive abilities remain largely intact. Although most children survive to adulthood, they require total round-the-clock care.

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RETT Founders' Story

Rett Syndrome doesn’t have to be a life sentence! Rett Eliminated Together Today (RETT) is an Arizona based 501(c)(3) nonprofit organization that is committed to funding research to make a cure accessible to all individuals with Rett Syndrome.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal subjects. Through extensive research a new gene therapy treatment has been identified with the potential to reverse the symptoms of Rett Syndrome and give back the lives of the 350,000 children and adults living with the disorder.

RETT is dedicated to funding the vital research necessary to find a cure for Rett Syndrome. Your contributions directly fund this grounding-breaking research.